Paralyzed Veterans of America
Paralyzed Veterans of America, a congressionally chartered veterans service organization founded in 1946, has developed a unique expertise on a wide variety of issues involving the special needs of our members – veterans of the armed forces who have experienced spinal cord injury or dysfunction. PVA will use that expertise to be the leading advocate for:
- Quality health care for our members,
- Research and education addressing spinal cord injury and dysfunction,
- Benefits available as a result of our members’ military service,
- Civil rights and opportunities that maximize the independence of our members.
ALS Association of MA
The ALS Association (National Office and Massachusetts Chapter) operates under a shared mission: to lead the fight to cure and treat ALS through global cutting-edge research, and to empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support
- Patient personal and household equipment support
- Patient and caregiver support groups
- Assistance in financial aid searches
Compassionate Care ALS
Compassionate Care ALS (CCALS) is a nonprofit organization with a mission to support people diagnosed with ALS, their families, healthcare providers, and communities as they navigate the complexities, both physical and emotional, associated with the disease. The organization provides resources including equipment, educational opportunities, Medicare/Medicaid assistance, communication assistance, guidance and awareness with regards to living with ALS, caregiving, and exploring end-of-life when invited. CCALS offers an innovative approach to delivering support and services to our clients, which we tailor to the needs of each individual and their support network.
Muscular Dystrophy Association
We provide programs and services that transform the lives of people affected by neuromuscular disease.
MDA Care Centers and Affiliates serve as the nexus for expert clinical care and medical research
MDA Resources - The MDA Resource Center is available to provide one-on-one support via phone, email or virtually for individuals and families looking for information about the diseases in our program, services, activities and more.
- Through the MDA Engage Community Webinars, families can learn about topic areas important to the neuromuscular community. Each online webinar will feature experts in the field along with opportunities to ask questions of presenters.
- MDA Engage Disease Symposia These one-day educational events empower individuals and families with knowledge and resources specific to one diagnosis. Information will be provided by experts in the disease-specific field and offers an opportunity for individuals living with a diagnosis, and their loved ones, to connect socially.
- MDA Engage Archived Videos
- View past MDA Engage Symposia and Webinars
Resource List for Families - https://www.mda.org/care/resource-list
St. Peter's Hospital ALS Regional Center
Since 1988, St. Peter's Hospital ALS Regional Center has been providing people with Amyotrophic Lateral Sclerosis (ALS), sometimes referred to as Lou Gehrig's disease, and their families with a comprehensive, specialized blend of services and resources.