Financial Resources

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ALS Family Charitable Foundation  -To provide patients and their families with the best possible financial and emotional support through their unique ALS journey.

• The A. George Kerr Patient Fund - This fund is designed to assist our patients with the unique financial needs caused by living with ALS.

• The Heath Millward Vacation Fund - This fund provides patients and their families with vacations that will allow them to celebrate their lives together. If travel is not in your plans, other opportunities (such as family reunions) exist through this fund.

• The Children’s Program  - Tailored to meet the needs of children impacted by this disease by providing financial assistance for expenses such as the holidays, back-to-school shopping, and summer camp. (We want to make these programs available to as many children as possible. If you or any patients you know have children that would be interested in participating in the A.L.S. Family Charitable Foundation’s children’s program, please email info@alsfamily.org with the names, telephone numbers, and/or e-mail address of the families.)

• The Jan Ferrara “Get Away for a Day" Fund - Provides funds for individuals, groups of patients, or caregivers to enjoy an outing of their choosing.

• The Respite Care Grant Program - This program provides assistance for respite care to patient caregivers. These grants allow a caregiver a break from the rigors of their responsibility.

• A.L.S. Family Charitable Foundation, Inc., Scholarship - Offsets the financial strain of a college education for a child of an ALS patient.

• Cape Cod Patient Fund - The Cape Cod Patient Fund has been generously funded by Cape Cod businesses and foundations and is earmarked for Cape-area patients and families.

• Disability Benefits Help - https://www.disability-benefits-help.org/content/social-security-programs - · Since 2009, Disability Benefits Help has provided information to individuals who are seeking to apply for Social Security Disability benefits or have been denied after applying for Social Security disability. We inform those with disabilities about the Social Security Disability application process and help them locate an attorney or advocate who can assist them by providing contact information of an attorney or advocate who represents applicants for disability benefits before the Social Security Administration.

Since 2009, Disability Benefits Help has provided information to individuals who are seeking to apply for Social Security Disability benefits or have been denied after applying for Social Security disability. We inform those with disabilities about the Social Security Disability application process and help them locate an attorney or advocate who can assist them by providing contact information of an attorney or advocate who represents applicants for disability benefits before the Social Security Administration.

HARK provides assistance to alleviate the financial burdens faced by families battling ALS. We offer support in many ways including:

• Purchased and donated a handicap accessible van to a pALS
• Purchasing equipment not covered by insurance
• Paying travel expenses for pALS to visit family or attend an important family event they would not otherwise be able to afford
• Visit communities across the country sharing Hope on the Horizon increasing awareness of ALS and benefitting a local ALS family
• Provide financial assistance for household expenses
• Assisting families with children during the holidays
• Provide assistance with home modifications

 Mission :  

• To improve life for people living with ALS by delivering innovative technology and equipment, as well as providing and empowering an improved life experience.